How to Lose Your Mom Over and Over
by Lylanne Musselman
After her hard falls, more messy accidents,
you give in to the reality mom is too hard to handle
at home, since dementia has deteriorated her health
in these two years you’ve been sole caregiver.
Confined to her wheelchair, it’s a mystery how
she escaped the first nursing home you thought
extremely secure. You’re thankful she didn’t become
a statewide Silver Alert in that chilly October air.
With mom settled into a new facility, you make it through
a first Christmas without her at family gatherings. Visit her
four or five times a week. Adapt to other’s well-meaning phrase:
“You’re so lucky! At least you still have your mom.”
Never expect a pandemic lockdown of nursing homes,
or that her hugs from last March will have to hold you.
Call her often, she doesn’t understand why you’re not visiting,
she cries hearing your voice, you never know how to hang up.
Summer, a reprieve of outdoor visits, with masks, six feet apart,
no hugs, no touching. Hard for her to understand the need
for distance, she accuses you of not caring whether she’s dead
or alive, then begs to drive. So much for happy visits.
In autumn, her nursing home locks down again. You’re thankful
they have no Covid-19 cases. Until they do in late October,
then the call: “Your mom has a fever spike.” Nurses assure you
she’s tested negative twice. In November, she’s isolated
in the Covid unit, afraid and alone. Her nurse calls several times:
“Your mom is yelling nonstop! We don’t know how to calm her down.”
Upsetting since no visits are allowed. That Monday, go stand outside
her window. She recognizes you, but she’s a shell of herself.
Her death glares you in the face. Hospice needs to be called.
On Friday the 13th: “Honey, your mom is going to meet Jesus.
It won’t be long.” These words are hard to hear anytime,
but when you can’t be there, it’s cruel. You’re isolated, lost.
You hope she’s in a better place. Know she hated the rest “home,”
being forced to play Bingo, being limited to that wheelchair,
never knowing why her parents weren’t visiting.
PAINTING: Mystical Conversation by Odilon Redon (1896).
NOTE FROM THE AUTHOR: When I saw the call for a “How to” poem, I knew I had to write about what it was like to deal with my mom’s dementia, the nursing home, and then her death. 2020 was a hard year. I felt by writing about the experience in this way, it would not feel like such a heavy poem, and it would be one that I could write without feeling that I couldn’t deal with the pain of it all over again. Anyone who deals with a loved one with dementia knows what a hard thing it is, and then when a pandemic hits and puts so many limitations on everyone, it makes a hard situation harder. My mom didn’t survive the year, and I’m still processing all that’s happened. Being a poet helps, as most of us know it’s how we process our feelings.
AUTHOR’S NOTE ON THE PHOTO: I had to include a photo taken last summer during the few months that I was able to visit my mom, outside with a mask, and at a distance. She was not one to keep her mask on. I miss her, and those hard visits.
ABOUT THE AUTHOR: Lylanne Musselman is an award-winning poet, playwright, and visual artist, living in Indiana. Her work has appeared in Pank, The Tipton Poetry Journal, The New Verse News, Rose Quartz Magazine, Silver Birch Press, and The Ekphrastic Review, among others, and many anthologies. Musselman is the author of five chapbooks, including Red Mare 16 (Red Mare Press, 2018), a co-author of the volume of poetry, Company of Women New and Selected Poems (Chatter House Press, 2013), and the author of the full-length poetry collection, It’s Not Love, Unfortunately (Chatter House Press, 2018). Musselman is currently working on another volume of poetry. Visit her at lylannemusselman.wordpress.com and on Facebook,
Very moving. I can empathise with this.
Very moving.
Heartbreaking–and played out in too many lives in 2020. (K)
This poem made me tear up.
Brought tears to my eyes. A mother. Never ready to say good bye even while thankful the suffering has ended. Thank you.
This poem breaks my heart. I am also dealing with grief through poetry. It helps, some.
I am so sorry.
Thank all of you for your kind comments. I appreciate them. I know my poem is unfortunately so relatable to so many these days. Writing about these hard things in life certainly does help.
This speaks to the pain of so many. And that last line is particularly heartbreaking.
Thank you, Lylanne. A deeply touching poem and I am profoundly sorry for your loss and the way it occurred. I have been separated from my mother, who has some dementia and some periods of utter clarity, and is about to be 94, for over a year. Fortunately the care home is impeccably risk-free — almost too much so — and one of my sisters has been able to arrange a couple of Zoom sessions. Garden visiting MIGHT be allowed next week. I hope to see her in late May. ❤
Thank you, Stephen. I’m sorry you’re going through the same situation. It is really difficult. I hope you get to see your mom in May! ❤